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Ella-Grace Honeyman was diagnosed with the rare and life-threatening brain condition Vein of Galen Malformation (VGAM) just 4 days before her first birthday in June 2008. That same month the Life for Ella-Grace Fund was founded by friends of the Honeyman family who were anxious to help and support the family by raising funds for her life saving treatment.

Ella-Grace underwent her first embolization on June 26th 2008, in Paris, and came through safely. She went on to have a further five successful embolizations on November 12th 2008, April 8th 2009, December 7th 2009, March 3rd 2010 and July 1st 2010, all in New York. However, Ella-Grace faces more procedures, the next, and seventh, surgery is scheduled for September 21st 2011 in New York, and is vital to her ongoing treatment.

We would like to take this opportunity to thank all those people who have taken Ella-Grace into their hearts and have helped raise funds to date. No words are adequate to thank people enough; it is due to their generosity and sheer determination that she is being treated by the most experienced surgeons.

This website has been set up to help create awareness of VGM, and to raise funds that will continue to help Ella-Grace receive the life saving treatment she so desperately needs.

February 2014 Update

The day has finally arrived - we have been set her next operation date. Dr Berenstein has chosen Wednesday 23rd July so our life has been thrown back onto the rollercoaster and it’s full throttle back into fundraising.

The latest news on Ella-Grace is that she remains stable health wise, which we are thankful for everyday, but her struggles at school have persisted. We have enlisted the help of a private tutor to help reinforce her learning alongside the work carried out at school, but despite all our efforts we have now reached a point where a statement of special educational needs is being applied for. Ella-Grace is working twice as hard as her fellow peers and still struggling with retention of information, combined with short-term memory issues and focus is a huge issue even with 1-2-1 help at certain points throughout the day.

Our fund is still £20,000 short towards her next procedure and fundraising starts again in earnest.

We hope and pray that Ella-Grace continues to get your support.

View our family album

News Feed

• TICKETS STILL AVAILABLE: Zumbathon with Lucia Alba. Sat. 12th July 4-7pm, at Hewett School. £10 per ticket

• Bowl-a-thon at Funscape, Saturday 14th June Another successful fundraiser. Looks like £1000 raised.

• Fun Day at Sprowston Sports & Social Club, Sunday 8th June Ecstatic to announce raising £3500 at Fun Day.

 

Website sponsored by

Fisher Healthcare Ltd, www.fisherhealthcare.co.uk
Fisher Healthcare Staff Training - One stop shop for Home Care worker training, www.fhctraining.co.uk
and Castle Windows and Conservatories, www.castlewindowsanglia.com

 

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